The Coordination of Rare Diseases At Sanford (CoRDS) is a registry based at Sanford Research in Sioux Falls, South Dakota. CoRDS collects information on patients diagnosed with a rare disease to help accelerate research into rare diseases. It was developed because access to information about rare diseases presents a challenge to researchers, patients and their families. CoRDS provides a way for researchers conducting clinical trials to search for individuals who would be able to participate in their clinical trial, and keeps individuals aware of the opportunities to participate in clinical trials.
If you or a family member have been diagnosed with a rare disease, you are invited to submit information to the registry.
Have Specific Questions about Enrollment? Please Contact:
Lauren Beaumont [email]
Coordination of Rare Diseases at Sanford
2301 E 60th Street North
Sioux Falls, SD 57104
Click here for the Research Brochure.