CoRDS Enrollment
If you or a family member have been diagnosed with a rare disease, you are invited to submit information to the registry.
We currently offer two process of enrollment via web or mail.
For web-based enrollment, click HERE to complete the web form or click on the icon on the left panel.
For mail-based enrollment:
- Complete the CoRDS Registry Form and click ‘submit’.
- CoRDS personnel will contact you and conduct a brief interview to gather basic information. CoRDS personnel will mail you the appropriate CoRDS consent form and questionnaire
- Read and sign the consent form, complete the 8 item questionnaire, and return the forms to CoRDS personnel using the pre-paid envelope provided.
- When CoRDS personnel receive the information, they will enter your information in the secure CoRDS database.
- CoRDS personnel will contact you annually to update your information. CoRDS personnel will also contact you regarding opportunities to participate in a clinical trial or research study.
*Participants are encouraged to contact CoRDS personnel at anytime during the enrollment process with questions.
Your information is stored in a secure database and is kept confidential.
Have Specific Questions about Enrollment? Please Contact:
Lauren Beaumont
Coordination of Rare Diseases at Sanford
Sanford Research
2301 E 60th Street North
Sioux Falls, SD 57104
Phone: 605.312.6423
Email: Cords@sanfordhealth.org
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